Thursday, May 16, 2013

Movie Star, Me, and Marathon

Many have asked me this week.what do I think of Angelina Jolie?  So here are my thoughts:

Am I surprised she has the mutation?  No. She has a family history.  She chose to adopt so many kids.  Many women with BRCA mutations struggle with the decision to have kids and potential pass the gene onto them. There are several other celebrities who have the mutation--Christina Applegate, Sharon Osbourne, Kara DioGuardi.

What do I think of her choice?  She's obviously a smart woman! Here's a link to here actual article.  Her explanation sounds like she went through the same thought process that I did.

Do you think it was a good choice to share?  ABSOLUTELY!  She was incredibly brave to publish that article.  Her publicity will make so many more women consider this as an option.  That doesn't mean that everyone needs to go out and get the genetic test or have a mastectomy.  But it will help people think about their family histories and just consider their options

What do you think of the media's response?  I don't know how I would feel to be her and have my choice be headline news. But I think that the media response to it has only helped the cause.  Many people didn't know what a BRCA mutation was or didn't understand the long hard thought process that went into my decision to have a mastectomy.  Many people probably didn't know that there is a Supreme Court case against Myriad Genetics, makes of the genetic test that made all this possible, for claiming to patent their discovery which is really our genes not an invention.  All of the reputable media outlets that I have read have portrayed accurate accounts and correct facts about this.  What I don't like are the ignorant articles or responses that have been posted online saying she's crazy, over-reacting, or just seeking attention.  If she wanted to do that she would have posed nude showing off the scars to share this decision rather through a well written article. All of the judging responses are really bothersome. It is a very personal decision that nobody else needs to understand.  I found this comic for those who still say her decision is too drastic:

Now onto me

Just like Angelina stated in her article, mastectomy was the first step.  I am inching closer to my second step.  My next step is going to be the removal of my fallopian tubes on June 14th.  I have checked out several doctors opinions as to what I should do to reduce my ovarian cancers risks.  All doctors, including one particular "Hot Doctor," have said that I need to have my ovaries removed.  Unfortunately this surgery has major side effects that I am just not willing to undertake right now.  There is new research that is showing that ovarian cancer may actually start in fallopian tubs and then move to the ovaries before it is detected.  Because of this and my refusal to remove ovaries yet, one doctor recommended removing my fallopian tubes instead. This allows me to have some protection for now, and then when I am ready I will remove my ovaries and be able to have complete protection.  The surgery should be very quick with an easy recovery and within a few weeks, I'll be back to enjoying summer vacation with the girls.

Finally, the marathon

It's finally time.  Mitch and I are running in the half marathon this weekend.  I've been training for what feels like forever.  I'm ready. I'm excited. I'm nervous. I originally had a time goal in mind, but now I just want to run it all.  I still have my squeak.  It used to only happen after a long run; now it's squeaking during runs usually starting around mile 2 and going right up until the end. I just turn my music up louder.  Sorry if you end up running next to me. After the marathon, my running partner wants me to get it checked out. We'll just see :)

1 comment:

  1. I have so much to say! 1. I totally agree with all you said about AJ. I find it annoying that people have an opinion about what she is to do/or not to do with her own body for her health's sake. Shows true ignorance in some people. 2. GOOD LUCK THIS WEEKEND! I know you said you don't have a goal but as a runner I know you have a SECRET goal that you won't admit to anyone. I hope you can make that secret goal!! 3. Are you talking about squeaking from the implants because I get that a lot when I run! ha ha I don't think anyone else can hear it though it is super weird! I know you'll be so proud after your half. I am already planning my next!! Keep us updated on FB with your results!!